Malignant neuroendocrine tumour of the sympathetic nervous system that originates from neural crest cells
Aetiology
- Affects 1 in 7 000 live births
- Usually diagnosed 18 months, 40% diagnosed in infancy
- 40% arise in the adrenal medulla, remainder mostly occur along the sympathetic chain
- Composed of primative appearing cells but can show maturation and differentiation towards gangliod cells
- Age and stage important for prognosis
- Amplification of N-myc and expression of telomerase predict a poor outcome
Clinical presentation
- Usually presents quite late - majority of symptoms are due to mass effects of the tumour or as a result of metastasis
- Symptoms include:
- Loss of appetite
- Vomiting
- Weight loss
- Fatigue
- Bone pain
Investigations
- Bloods - FBC may detect anaemia, raised inflammatory markers, abnormal coagulation tests
- CT
- Biopsy
Management
Depends on risk stratification:
- Low risk patients are simply observed for spontaneous resolution or are treated with local resection
- HIgh risk patients are given multi-agent chemotherapy, surgery and radiotherapy